COLUMBUS, Ind. (AP) — A 5-year-old Columbus boy lost his battle to cancer 12 months ago, but his "Angels" are still fighting for a cure.Just before preschool, Peyton Whittington was diagnosed with diffuse intrinsic pontine glioma, a disease that strikes the brain stem and renders nervous system function impossible. He died a year later.His parents, Lynn and John Whittington, still are grieving. But they are dedicating their lives to finding a cure.Lynn Whittington launched the Peyton's Angels Indiana Chapter of the Cure Starts Now in December. She has been preparing for the chapter's first event ever since — and now it's here.All proceeds will go toward finding a cure for DIPG and other pediatric brain tumors. Statistics show that fewer than 10 percent of children diagnosed with the disease will live longer than 18 months, and survival is even rarer."I look at DIPG as an intruder who broke into our lives, tortured and killed my son," Lynn Whittington said. "I'm going after this disease with everything I have."It was two years ago on Father's Day when the Whittingtons' world crumbled.Peyton was learning to ride his bike on June 15. The next day, he felt dizzy and was seeing two trees in the family's front yard where only one stands."He couldn't even stand or walk," John said. "He was acting the same as somebody who drinks too much, but the problem is it just keeps going."Peyton was bleeding in his brain and was rushed by ambulance to Riley Hospital for Children at Indiana University Health in Indianapolis on June 17.He fell asleep there during an MRI — the moment doctors realized how serious Peyton's illness was."The doctor burst through the doors and started shaking him," his mother said."She said he should not be sleeping. He was slipping into a coma. She said, 'We need to do something now, or we'll lose him.'"The tumor was in his brain stem and it could not be removed.As Peyton went into surgery to release the pressure, his family said goodbye to him. They did not know whether it would be for the last time.But they had another year with Peyton.The Whittingtons took a helicopter ride through the Grand Canyon. They saw the Beatles LOVE show in Las Vegas. They painted pictures with dolphins by putting paintbrushes in the animals' mouths.John Whittington said the family learned to live for the moments between MRIs, which were scheduled for every 30 days. It was the MRI that would reveal whether the tumor was growing."We knew one of the days it was not going to be good news," he said.They drove an RV through nine states so Peyton could see his country. They hiked to the top of Pike's Peak and visited beaches and his great-grandmother. Peyton met Spider-Man and took lots of airplane rides."We wanted to experience everything we could as a family," John Whittington said. "We really did live like there was no tomorrow."But tomorrow came and the tumor was growing.Peyton went through radiation therapy and chemotherapy, but he also had fun with friends and family.On June 2, 2013, Peyton's parents threw a party for him after the Miracle Ride for Riley. There was a tent set up and motorcycles rode up the hill to the Whittingtons' home southeast of the city. There was a magician, food, prizes and games.Peyton's mobility was challenged at that point, so he played checkers and Memory with his friends.As Peyton's friends left the party, they showered him with hugs and kisses."They said goodbye to him that day, but they had no idea it was forever," John Whittington said.Peyton died peacefully in his mother's arms June 4, 2013.Peyton's picture still hangs on the wall next to his twin brother Stillman's most recent school portrait."It's hard seeing Peyton stay the same age and watching his brother get older," his mother said. "We had a hard time changing that photo out."There are still times she is overcome with grief.Like when she reaches down to hold Stillman's hand and instinctively reaches for Peyton's, too. Or when she buries her face in the shirt Peyton died in, only to learn the scent has disappeared.She said there is not a day that goes by that she does not shed a tear or two.June 8 marked the one-year anniversary of the day Lynn and John Whittington buried their son.Though she usually tries to stay strong, Lynn Whittington hid in her bedroom that day. She slept, watched TV and prayed."Every time I dozed off, I dreamed of him," she said. "It's funny, in my dreams I no longer see him as disfigured from the tumor like he was in that last year. I always dream of him the way he was before. He is always smiling and full of life and energy."She said she thinks that is Peyton's way of telling her that he is happy and healed.His father misses Peyton when he sees the stack of Republic newspapers in his closet. Peyton would run upstairs with the day's edition before Lynn could throw it away.He would sit on his bed with John and look at the weather maps to see where it was warm and where it was cold.John Whittington is not the biological father to Peyton and Stillman, but he wanted to claim the twins officially as his sons after Peyton's death.On Oct. 31, he became the first father in Indiana to be allowed to adopt a son post-mortem."He has loved them since the first day he laid eyes on them," Lynn said. "He views them as his own and they only know him as their daddy."Stillman also struggles with the loss of his twin. His parents said he talks about Peyton all the time. He races toy cars with him, and he plays checkers with him by moving both pieces."He's still in his heart. They have that bond," their mother said. "Stillman recently said that Peyton is not in heaven. That he is here with us, but we just can't see him."John and Lynn Whittington have used that opportunity to teach him that like Jesus, those whom they love are both in heaven and in their hearts.Peyton never met his baby sister, Alexandria Whittington, who was born two months after his death — but he still left his mark on her. Before her birth, Peyton nicknamed her Pickle, and Lynn Whittington sometimes calls her "our little Pickle."She said Alexandria has a personality of her own, but her mother still sees Peyton in her.Peyton also made an impact on the Rockcreek Elementary School community, where he attended school. Lynn Whittington sees that when she browses Instagram and finds pictures of her son with the caption "#MCM," a hashtag that stands for Man Crush Monday.The school raised nearly $400 through Caps for a Cure, where students can bring a $1 donation and are allowed to wear a hat for the day. Cierra McCauley, who was battling cancer alongside Peyton, helped raise $800 with her dance class at Sonya's Dance Zone."It's really amazing to see the impact a preschool student has on the entire school," John Whittington said.Even after he is gone, his parents are convinced that Peyton is continuing to make a difference.John and Lynn Whittington donated Peyton's tumor for research. They have learned the tumor is still growing — news that brought them anguish during Peyton's life but joy after death.That development means scientists can watch how the tumor progresses and benefit from that information."It's hard, but if people don't make that decision, research will never advance," John Whittington said.They are also going after the cure with money.Peyton's Angels Indiana Chapter already has raised more than $17,000, with proceeds from Sunday's carnival adding to the total.There will be a silent auction for items including gift baskets and getaways.Hackman's Farm Market and Greenhouse donated plants to sell at a booth called Planting for Peyton. Right after Peyton died, people across the country bought plants and on a certain day planted them in memory of him. They would send pictures to Lynn of their gardens.John Whittington said the chapter is not asking anyone to turn over a blank check. They have done their research on The Cure Starts Now and believe in its mission.While most money from cancer awareness organizations is allocated to cancers with more victims, The Cure Starts Now focuses on pediatric brain cancer.DIPG is one of the most resistant of all cancers to chemotherapy treatments. It affects primarily children, whose treatment has in the past led to innovations in other forms of cancer."Put together, these obstacles offer researchers a chance to revolutionize cancer research and prevention," according to the foundation.The Cure Starts Now, with the help of Peyton's Angels Indiana Chapter, is searching for the home run cure."We really have turned this into a passion," Lynn Whittington said. "Hopefully one day we'll stop, but only if we find a cure."

large_Screen Shot 2022-12-18 at 2.27.14 PM.png

medium_Screen Shot 2022-12-18 at 2.27.14 PM.png

small_Screen Shot 2022-12-18 at 2.27.14 PM.png

thumbnail_Screen Shot 2022-12-18 at 2.27.14 PM.png

Screen Shot 2022-12-18 at 2.27.14 PM.png

Honoring their angel: Boy's parents fight for cure for cancer

• Developed relationships and built trust with school and health leaders as a beat reporter.• Delivered daily news content while also working on in-depth investigative pieces.• Studied complex issues in health and education and distilled the information into interesting and informative articles.

Education & Health Reporter

health

nonprofit

A single ripe tomato sits on the windowsill of Rosemary Poe’s ground-floor apartment.&nbsp;To most people, the fruit only represents the summer bounty still to come. But to Rosemary, the tomato is a symbol of the choice and possibility she has found since she came into the care of ADEC.&nbsp;Rosemary was skeptical when she first came into contact with someone from ADEC in 1984. She remembers cowering in the corner of a room in a home owned by Jill, who was a group leader for ADEC at the time.&nbsp;“I didn’t know what to do,” Rosemary recalled. “I was scared and I thought I was in trouble.” It was a police officer who dropped Rosemary off at Jill’s apartment, rescuing her from an abusive home. Her father had been abusing her – emotionally, physically and sexually – since her childhood.&nbsp;Even when Rosemary was injured from helping her dad with scrapping work – moving heavy machinery and stripping it down with a sledgehammer – he would not take Rosemary to see a doctor.&nbsp;Once, when Rosemary attempted suicide to escape the abuse, her father made her suffer through the overdose by herself.&nbsp;“Dad was hurting me in every way he could, through every abuse there was,” she said. “He kept me locked in that house. It was like a prison. He told me that I could never come back home if I ever left.”&nbsp;But once the police intervened, Jill and others at ADEC worked tirelessly to make sure Rosemary knew she was finally safe and free. ADEC petitioned to be Rosemary’s legal guardian and has protected her and acted as her advocate for more than 30 years.&nbsp;Rosemary was one of the first individuals to be served by ADEC’s corporate guardianship program, which serves more than 60 individuals by helping them with personal decisions, advocating for them and protecting them.&nbsp;“Without ADEC, I would still be in the same hellhole I was born into,” she said. “I’m happy now.”&nbsp;She’s happy because she can finally grow her own tomatoes on the patio of her apartment – something she only dreamed about for many years. ADEC helped make that possible by connecting Rosemary with the care and resources she needs and deserves. She’s happy when she crochets colorful blankets at home or meets with friends every Tuesday to knit and talk. And she is happy because no one is trying to hurt her or steal her money any more.&nbsp;It’s a very real fear for Rosemary and others with disabilities. Studies show that they are four to ten times more likely to be abused than those without disabilities. That is part of the reason ADEC’s guardianship program is so important – in its 30-year history, the program has rescued dozens of individuals from situations similar to Rosemary’s. Yet the program is one of a few administered through ADEC that receives no federal or state funding. Additionally, about 15 percent of the individuals who receive guardianship services receive no other services from ADEC.&nbsp;Still, ADEC remains committed to making sure each guardianship client finds A Life of Their Own, Dignity, Employment and Community – the four core values that guide everything ADEC does. And that means a lot to people like Rosemary. Each week, Tobi Weirich, Rosemary’s guardian advocate, visits her in her apartment to make sure she is receiving the medical care she needs, her home is safe and clean and her finances are being properly handled.&nbsp;“I don’t have anybody beating me up anymore, or anybody trying to hurt me,” Rosemary said. “Plus I get to go to the doctor when I’m sick. It feels so good to make my own decisions.”&nbsp;Rosemary said she hopes that by sharing her story, she may be able to reach and help someone who is experiencing abuse like she did during her childhood.

large_IMG_7853-1200x800.jpeg

medium_IMG_7853-1200x800.jpeg

small_IMG_7853-1200x800.jpeg

thumbnail_IMG_7853-1200x800.jpeg

IMG_7853-1200x800.jpeg

ADEC’s guardianship program protects people with disabilities from abuse

Managed a department of 4 FTE specialists to to handle internal and external communications for the nonprofit that serves more than 1,200 individuals with disabilities.• Led the “65 Stories for 65 Years” storytelling campaign that reached more than 1.3 million users on Facebook (including Justin Timberlake).• Increased self-referrals to services by 16% by clarifying messaging around program offerings and benefits.

Communications Director

disability

When Cody Hall, a mechanical engineer from Elkhart, visited Malawi on a mission trip, there was a single phrase that stuck with him: “Madzi ndi moyo.”

It means “water is life.”

“This is not water for shaving. This isn’t water for washing your motorcycle,” Cody said. “This is the water you drink. It’s the water you cook with. It’s the water you give your children that sustains them. It’s what life is based on and you can’t live without it.”

But water systems require regular maintenance, which can be time-consuming or even dangerous in war-torn countries.

That is why an Elkhart-based organization has developed a universal satellite monitoring system that reports data on the health of water systems in underdeveloped countries. 

The SonSetLink™ water monitor can track anything from the number of gallons flowing from a single system on any given day to the levels of chlorination in that water.

Water systems fail, and our water partners often don’t realize it until it’s too late – or they waste time checking on pumps that don’t need maintenance. The SonSetLink™ water monitor  provides data that informs maintenance crews and helps them plan routine and emergency pump maintenance . The result? Clean water keeps flowing.

SonSet Solutions has deployed more than 750 water monitoring units to more than 25 countries across the world so far.

One of the units has been installed in a remote village in the Ecuadorian jungle. The water system failed one day, and the village gathered to figure out what to do. A man from the village soon embarked on a long journey to the offices of the organization that installed the water system. After an eight-hour walk through the jungle and a four-hour bus ride, he finally arrived.

But thanks to the SonSetLink™ water monitoring system, the team had already learned of the system failure and had pulled the schematics to begin the troubleshooting process.

However, the man’s journey was not in vain.

“He arrived just in time to learn about possible failures and their repair procedures, and to collect the equipment needed to restore the flow of clean water in record time,” said Doug Weber, creative director for SonSet Solutions. “Does water monitoring really make a difference? It did for this village.”

**ABOUT SONSET SOLUTIONS
**
SonSet Solutions is an Elkhart-based nonprofit that aims to provide technology-based solutions to advance the Gospel worldwide. The organization believes that technology can expand the reach and deepen the impact of ministries around the world. In addition to the SonSetLink™ water monitors, SonSet Solutions specializes in building portable, solar-powered radio receivers and establishing radio stations to bring hope to communities around the world. 

large_download (3).jpeg

medium_download (3).jpeg

small_download (3).jpeg

thumbnail_download (3).jpeg

download (3).jpeg

SonSet Solutions keeps clean water flowing with satellite monitor

Offer story-driven marketing services in the areas of content, design, strategy and development. Selected projects and accomplishments: Directed content strategy for Futurestay as the SaaS start-up successfully raised $11 million in Series A funding.<ul><li>• Used content (including webinars, ebooks, video, case studies, press releases, blogs &amp; more) to drive a 533% increase in organic traffic</li></ul>Served as the director of digital communications for the grassroots campaign of U.S. Congressional candidate Pat Hackett.<ul><li>• Earned media coverage from the New York Times, Newsweek, Marie Claire, NBC News, Time Magazine, among others</li><li>• 75% of voters contacted through campaign turned out to vote, compared with just 47% overall turnout</li></ul>Acted as copy lead on agile sprint testing campaigns. Used in-depth discovery work and user personas to draft, test &amp; iterate on messaging to drive growth.<ul><li>• Reduced CPC by 53% for electric vehicle rental start-up Borrow</li><li>• Achieved a CPI 33% lower than global iOS average for Morty, an app for escape room enthusiasts</li></ul>

Creative Director & Founder

technology

business

Topic: nonprofit

Articles

Honoring their angel: Boy's parents fight for cure for cancer

ADEC’s guardianship program protects people with disabilities from abuse

SonSet Solutions keeps clean water flowing with satellite monitor